How to be a Mother. In case you were curious.

How to be a Mother; from the mother of 3 on the Autism spectrum

This Mother's Day weekend, I want to share my perspective on mothering by way of having 3 children on the Autism spectrum.

About 16 years ago, when I first was initiated into motherhood (i.e. by being pregnant,) I thought being a mother would be easy. You really have to love the naivete of a twenty year old girl. I had watched other girls and women effortlessly give birth to amazing, perfect children and I had no doubt that I would as well. That is exactly what I did. My newborn son was the joy of my life, my raison d'etre, the apple of my eye. Everything he did was amazing and I couldn't even remember my life before him. I still treasure those early gifts of motherhood, watching your child learn and grow and being totally amazed by what you created. It was so empowering, I felt like a god. No, I was God. Next stop, reality check.

At this point you can insert my-your-our Autism intro story. Regression, blah blah blah, search for answers, blah blah, blah, diagnosis, blah.

Here is where it gets complicated; not unlike many other Autism parents, I mourned the loss of what I didn't have. I was sorrowful, I blamed myself.
I also stopped being joyful and became an emotionless task master. I threw myself into autism research and treatments. As my 2 subsequent children were also diagnosed, I started to feel less like a mother and more like a caregiver in the most disconnected sense of the word. Did I love my babies? Of course, without a doubt, but I found it very difficult to find joy in my situation.

Unfortunately I was trapped by the idea of what I perceived I lost to Autism. Children can represent so many things for parents. They are the connection between you and your mate,  the unrealized dreams for the future and most importantly they are your legacy. My kids represented my footprint on this earth, my genetic contribution to the world narrative. They would carry my story long after I'm gone. Maybe. Maybe not.

Sound a little pitiful? I was.

I started to look for the meaning of Autism. Why me? Why them? Was there a greater spiritual purpose to being Autistic? I certainly would like to believe so. I don't think its my place to decide especially since I am not Autistic. I will never truly understand how my kids see the world and their place in it. It dawned on me that my sadness was inappropriate. I had allowed myself to become wrapped up in the identity of Autism. In my search and struggle for meaning I could now see that I needed to separate myself from the concept of autism, disability and ability all together.

I am a mother, their mother. Their only mother, no matter what. Labels and perceptions are unimportant. I don't know how it happened, but I figured it out. I am still me. Yes, I am a mother, but I am still me. I don't need my kids to carry my legacy, because I can carry my own and they can carry their own and neither has to be connected or related even though it is. The point is it doesn't have to.
Guess what, you don't have to live for your kids, be responsible, take care of them, yes, but you really need a life of your own, totally unrelated to your offspring.

Kudos to you who got it early on. I am not ashamed to say I didn't. Life is a journey, our experiences can take us so many different places. Places we may never have gone.

Am I tired? Yes. Am I overwhelmed? Hell yes. Is it worth it? What is "it?" If "it" is the experience of being on the ride of a lifetime, then yes. If "it" is some inane idea about sacrifice and oblation, than no. Raising children is not about sacrifice, its about responsibility. I always wanted children, I have never sacrificed anything about my life for my kids. I hate when people use sacrifice and children in the same sentence, it makes it sound like you are doing something different than 5 zillion other parents. I make adult decisions and sometimes I make child decisions, but sacrifice is for saviors and I am no savior. I'm no saint either.

My perspective has been forever altered, in a good way. I have met wonderful, amazing people that only exist in the autism world. I am blessed, because my kids will never be pawns and I can never live vicariously through their exploits. Not because they don't have them, but because I don't want to. Frankly my kids have some pretty amazing experiences and they get to do very cool things. Guess what? So do I and so will I.

People want to see the tragedy of our story and there is nothing to see. Sorry, no trainwreck here, keep moving no car crash to see. Yes we do have our Autism themed emergencies; wandering, meltdowns and communication difficulties. So what? What family is without blemish?

I am a damn good mother. If I do say so myself. I am proud of me. My kids adore me, despite my early doubts and confusion and my crew is awesome.


How to be a mother? Be yourself. Do you. Not in the irresponsible, unfit parent way, but in the confident, loving and healthy way. Release your expectations stand back and let your children blossom. They chose you for reason.

Happy Mother's Day.

Life Goes On

I love to write, but sometimes it gets very difficult to to express what is happening in my life and the lives of those I love. When that happens, I don't write, thus the 7 month gap between post.  But I was busy, I was pregnant.

I have two new additions to my life, I recently (12 days ago recent) gave birth to identical twin girls; Marilyn and Evelyn, so now my brood is up to 5.  Yes 5 kids. I always wanted a big family. Its been rocky; good news follows bad and vice-versa.  I will expand on that in another post, but right now, I am 12 days since delivery and its the first time I have had a mind to reflect on my blessings and these two beautiful little identical angels that have come in to my life. I say identical, but we can easily tell them apart. Evelyn is half the size of Marilyn.  Unfortunately there was a knot in her umbilical cord which limited the amount of nutrients she received in the womb. So far, both are healthy and growing bigger every day, Evelyn has already gained a pound since leaving the hospital.

My older kids they have accepted them in their own way.  My eldest son who is 14 is aware but interaction is limited, I think they are still too small for him to really be interested, my eldest daughter, who is 11 has held both of the babies, seems tolerant, but my former youngest daughter, 8 was very wounded by me bringing two new babies home, its really taken her a week to start dealing with me again.

For the last 6 months I have been asked how am I going to do this. I really don't know how to answer that question. Its a really silly question so from now on the next person who ask me that I am going to say; "Oh I have a 12 point plan on how I am going to do this, would you like to review it?" I know its a little smart ass, but who cares, we all need to get our laughs in when we can.

For today, I will not worry, or get anxious, or fret. I will just be thankful and happy and blessed with my new world and its new inhabitants.

I miss it!!!

Its been about nine months since I last posted.... and I miss it terribly.  I miss doing the show and most of all I miss sharing things about my life through the blog and the show.  So, I decided, to start it up again!

Things will be a little different this time around.  There is a saying, about walking a mile in someones shoes and yes my feet are tired.
I have a totally different experience that I want to share with other parents.

A little re cap
I have 3 kids on the autism spectrum.  Last August, I had an epiphany of sorts, that happened to coincide with my new job.  Previously I had spent the last six years being an at home mom.  With the kids needs I found difficult to hold down a full time job.  With my youngest entering kindergarten, I thought it might be a good time to go back to work.  And it was.  Not only that I reconciled with my husband and I moved to another state.


Change, change and more change!  Surprisingly the kids handled it better than I expected.  But the road has not been without its bumps and bruises.  All detailed in my upcoming radio broadcast.
The life of working mother with kids on the autism spectrum is dramatically different than the life of mother at home.  No brainer, right?

At the onset of this shift, I had altered my long held views on autism and how I processed the children's label and abilities. Most of these realizations have not changed, instead, I would say they have been enhanced.
I am no longer the advocacy aficionado I once claimed to be.  In fact I probably need an advocate(more on that in a future post!!!!)  In the upcoming shows and post, I will be learning as much as I am facilitating.  I welcome this new role and I can't wait to get started

I have no guest planned for the next show.  It will be me in a shorter segment of time, but what I hope to share with you will hopefully be uplifting, encouraging and brutally honest.

So if anyone is still reading this blog and wants to listen to the next broadcast, welcome!

See you Sunday, time to be determined as the rules and regs of the platform I use for the show have also dramatically changed.

If one thing is constant its change, whether we like it or not.

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